Member Blogs

Sickle Cell Disease Walk-For-Education & Awareness (Please Read)

Hi everyone, I just created my team for the 10th Annual 10K Sickle Cell Disease Walk-For-Education & Awareness here in NYC.

Here's some information about Sickle Cell Disease.

1) What is Sickle Cell?

Sickle Cell Disease is an inherited blood disorder.

2) Who is Sickle Cell Prevalent in?

African, Caribbean, Central/South America, East Indian, Middle Eastern, Mediterranean, Asian and Southeast Asian ancestry.

3) How does Sickle Cell Disease affect the people that have it?

a) It can cause moderate to severe anemia and enlargement or damage of spleen.

b) Dysfunction or acute failure of the liver, kidneys or lungs.

c) Damage to tissue and bone due to diminished blood flow and loss of oxygen.

d) Stroke due to infarction of blood vessels.

e) Chronic and severe pain that can occur on a daily basis and results in frequent hospitalizations.

4) What will your Donation help with?

It will help to raise public awareness of Sickle Cell Disease as well as other hemoglobin disorders. It will also support the SCTPN Undergraduate Scholarship and the Lori N. Fleming Belanger Graduate Scholarship Fund for people with Sickle Cell Disease.

I am personally afflicted with Sickle Cell Disease and for me it causes pain on a daily basis. I've been hospitalized many times, the first time being only 8 months old. SCD is not fun by any strech of the imagination but it has helped to make me the person I am today. I've had to overcome many obstacles in my life and I am determined to keep overcoming them.

My team is called Inspiration and I'm looking for members if anyone is interested you can join my team by going to: http://www.sctpnwalk.kintera.org/inspiration . You don't need to be in NYC to join my team and help raise funds for Education and Awareness. If you don't want to join my team but would like to make a Donation or know someone who would like to make a Donation you can do so on my personal SCD Walk site at: http://www.sctpnwalk.kintera.org/showard . All Donations are greatly appreciated, raising public awareness for SCD is extremely important. It gets us a little closer to finding a cure. You can find out more information about Sickle Cell Diease and the Walk on my site at: http://www.sctpnwalk.kintera.org/showard .

Date: Saturday September 20,2008 (Rain or Shine)

Registration: 9am-11am

Walk: 11am-2pm

Location:Central Park- Mineral Spring- West 67st Central Park West

Onsite Blood Donation Van and Bone Marrow Testing

If you have any questions feel free to send me a message.